Monday, February 28, 2011

Kate,

 Kate last Monday on her snow day with her sister, Olivia, and a friend.
Kate Friday with her dad. She didn't feel good after her fall.

Kate leaves tomorrow afternoon for Houston. She didn't feel good all weekend but today, she is feeling better. The headaches she was having are most likely spinal headaches from her spinal tap. Kate went to school today for one last full day before they leave for Houston. Her teacher was able to get the kindergarten production for April moved to tonight so Kate could join in. Kate's time, it would have just started. Wednesday she will meet with a neuro oncologist, get blood draws, have an MRI, meet with her radiation oncologist, and a CT scan with simulation for the radiation planning. The MRI will determine whether they continue with radiation or go look at other things. If the original tumor sight is significant cancerous, then, they will potentially have to reevaluate treatments once again. It has been a month since Kate was last scanned. I just pray the tumors have not increased too much in size with no treatment. 
Please pray for Kate.

Sunday, February 27, 2011

Joe Hill,

On July 31, 2010, a 13 year old boy named Joe Hill in my town was diagnosed with leukemia. He had surgery and started chemotherapy the next day. He has not been doing good most of his fight. Tonight, they do not expected him to make it. He is on a ventilator and is struggling to accept the air. I don't know him personally but I have many friends that are good friends with him. Please pray he receives the miracle he deserves! Storm the heavens for Joe tonight!

Friday, February 25, 2011

Well,

I thought I wouldn't be posting on Kate for the next couple of days but, here it goes.

 Kate before she was diagnosed.
 Kate the day before brain surgery.
 Kate during treatment.

Kate fell today. She hit her head. She started having a bad headache and stomach pains. They took her to the emergency room and they ordered a CT scan. They are now waiting on the results.

Our poor Kate can't get a break.
I was just looking through Kate's dad's Facebook pictures and I  found this one from January 27, 2010.
 Kate figured out how to send a picture with Aaron's phone to Facebook. The description was "Tghyfghvvvbfwhr. GXHfvftvfcddvrvjffgcfdskHN"
Isn't that adorable?! 

I just saw where it said her CT scan looked okay!
They said she probably has a concussion.
They also added,  "never thought we'd be relieved to hear those words!"
That is amazing to think most families are devastated when Kate's family is just glad it's not cancer.

Well, I'll end it with a newer picture of Kate as the ones at the top are older. This is from last weekend at Disneyland!


I wanted to write again but I don't know what to write about. There is nothing concerning Kate or Taylor. Not even McKenna. Daisy has a little news.



Daisy starts 2 weeks of radiation treatment next week. Her scans this week showed no traces of cancer! Go Daisy! Daisy 2, cancer 0! Please pray she has no side effects! I also want to wish a late birthday to Savannah!


Savannah Hope Swandel turned 11 on February 23, 2011! She has fought against alveolar rhabdomyosarcoma since she was a few weeks shy of her sixth birthday. She has relapsed twice. Valentine's Day of this year, Savannah started hospice (pain management team to Savannah). Her cancer is spreading rapidly and she needs lots of prayers.

Thursday, February 24, 2011

Tonight,



 Kate at her birthday party only days before her MRI.

Kate's snow day, Monday. Look at those missing front teeth!
 
Tonight my heart is heavy but I'm still grateful for the new news on Kate. Her spinal tap was cancer free! It doesn't change anything, but I am overjoyed with the thought of no cancer cells in her CNS. Kate and most likely just her mom will temporary move to Houston, Texas next week for modified cranial spinal radiation. They will not be re irradiating where her original tumor was because she has already had radiation to it. Kate will have an MRI next week to see if the original tumor bed is cancerous. If there is a lot of growth where it is, they would sit down and discuss if this kind of radiation is the best path. Kate and her mom have already been to Houston for 6 weeks of proton radiation last April-May so they will know how to get around a little at least. I'm just glad no cancer cells were in her spinal fluid. Another small miracle. Praise God for the little things!
Praying for complete healing on Earth, peace, and strength for Kate and her family.

Wednesday, February 23, 2011

Ellie's Battle with Cancer: A True Story






Ellie Shoal Potvin and Grace McGee Potvin were born October 31, 2001. They were healthy, beautiful little girls. They both had amazing blue eyes and beautiful blond hair. Ellie and Grace were best friends from the day they were born. They did everything together. They loved being around each other and doing their favorite things. They both were smart, funny, and loved life. For their sixth birthday, Ellie and Grace's parents took them to Disneyworld, They had so much fun there. They went to parades, watched shows, met Disney characters, and did so much more. They had the time of their lives.
On July 2, 2008, Ellie and Grace's world changed forever. That night as their mom was powdering Ellie after giving her a bath, she found a lump in Ellie's hip area. They rushed Ellie to the emergency room around ten o'clock at night. Tests were run and by two in the morning they received the worst news possible.
Ellie had stage 4, group 4, high alveolar rhabdomyosarcoma. Rhabdomyosarcoma is a rare childhood cancer affecting only a couple hundred kids a year. Ellie had a massive tumor in her left hip and trunk, and more tumors in her lungs. Since her cancer had already spread when she was diagnosed, Ellie was given a thirty percent chance of surviving five years. Ellie and her family's hearts were shattered. Being high risk meant if Ellie went into remission, she had a high risk of relapsing. Ellie began the fight of her life.
Ellie's first chemotherapy treatment was July 4, 2008. Thankfully, she came out of the first round with no side effects. Chemotherapy continued and Ellie was in and out of the hospital every week. Each round of chemotherapy made her more sick. She lost all her beautiful blond hair. She got sick several times a day. Her immune system became compressed making her very likely to get an infection. Ellie began radiation just before her seventh birthday. She continued with chemotherapy at this time, also. Radiation and chemotherapy combined were hard on Ellie's body. She became very sick. She slept most of the time and she didn't want to eat. When she did have bursts of energy, she played with her sister or her dog. These activities never lasted long and Ellie would become exhausted fast. Grace supported her sister. When Ellie wasn't feeling good and she was down, Grace lifted her up.
A website was made for Ellie called "Lift Up Ellie!" People from around the world visited the site daily. Ellie touched everyone she came in contact with. The website helped her family write updates on her instead of calling everyone about something new.
Ellie completed 31 treatments of radiation to abdomen and lungs in six weeks. She continued with chemotherapy. She was in and out of the hospital for fevers and chemotherapy. Ellie lost a lot of weight but she always had a smile. She fought like a true champion.
On May 25, 2009, Ellie was declared in remission. This meant there were no detectable cancer cells in her body and she would no longer need treatment. Ellie spent her summer having fun. She went on her Make-A-Wish trip to Disney World. She went to a cancer survivors only camp called Camp Libby Lou. She hung out with her friends and her family. She had a very fun summer. Her hair began to grow back, too! She grew back her eye lashes and eyebrows which she loved.
On October 1, 2009, Ellie had her three month scans off treatment.That night the doctor called and said there was a new spot where her original tumor was. Ellie had relapsed after only 3 months of remission. This meant Ellie's cancer was very aggressive. Every time a cancer cell survives a chemotherapy treatment, it becomes stronger. Ellie started chemotherapy again. A month later, they found out the chemotherapy was not helping and the cancer had spread to her lungs again. Ellie was started on a new trial but only one month later, they found out it had failed, too.
On December 28, 2009, Ellie was given four weeks to live if the chemotherapy treatments they were about to give her failed. Miraculously, the chemotherapy started to work, but it made Ellie very sick. She constantly had fevers. She was in so much pain and she was suffering.
In April, Ellie and her family went to the beach. Ellie loved the beach so much. She was so happy to be away from the hospital and chemotherapy before five days of chemotherapy and scans.
When they got home, Ellie had scans to monitor how the treatment was helping. It showed the treatment had failed and she was developing new tumors in her lungs and her other tumors were growing. Ellie was taken off chemotherapy and sent home so she could live out her last days. Her family didn't give up. Her parents decided to start alternative treatments. She began chiropratic treatment, hyperbolic chamber treatments, and protein supplements from Venezuela.
At the end of May, Ellie had scans again to see if the alternative treatments were helping. The scans showed more than 40 tumors in her lungs and her hip tumor was spreading down her leg. Her family wasn't giving up though and she continued alternative treatment until she couldn't anymore.
On June 21, 2010, Ellie's family decided to make a last minute appointment to a surgeon. They were afraid her hip tumor would bust through her skin at home. They hoped there would be a way to debulk the tumor before is broke through. Ellie would need a chest x-ray to see if surgery was possible. The chest x-ray showed her right lung was almost completely filled with tumors. Her left lung was filling up, too. A growing tumor was starting to block the valve to her lungs that let air in. The doctors were surprised she could even breathe. Her hip tumor burst while they were waiting for the surgeon. Ellie was sent home with only a couple days to live.
Ellie kept fighting, though. She would struggle to breathe because of the growing tumors. She still told her mom, "Don't worry, Mommy. I'm not going to die." She believed she would be healed on Earth. Ellie kissed her biceps and told her mom, "I am strong. A fighter." Ellie continued in and out of her morphine sleep.
On June 23, 2010, at 11:35 in the morning, Ellie took her last breath. She reached to the sky like a baby bird. At last, she was at peace. In her mother's arms and her dad's side, Ellie Shoal Potvin grew her angel wings at the tender age of eight.

Tuesday, February 22, 2011

My heart has been hurting a lot lately. Tonight, I don't have words as to how I feel. I just feel like writing. Cancer is evil. Kate had a spinal tap today to see if cancer cells are in her spinal fluid. The doctors are pretty sure there is because one of the new tumors is in a ventricle. She has 2 new lesions. Her parents were hoping to start cyber knife radiotherapy to contain the new tumors, but last night said there may be a change in treatment plans. God, help this little girl and her family. Cancer sucks. I still can't believe Taylor has relapsed. It took me long enough to believe Kate relapsed. Sometimes, now, I still don't believe it. But now, Taylor, too. Taylor has a few neuroblastoma cells in her bone marrow. She will be having different tests and scans done the next few weeks. She will be going to different doctors to see treatment options. Just like Kate did. Taylor's website posted a picture of Kate asking for prayers the 11th. It says in the caption something like "Unlike Taylor, Kate's parents are having to face something no parent should." Only a week later, Taylor's parents are feeling the same as Kate's. It's crazy to think that both of these beautiful girls' families have to go through this again. It's bad enough when your child is diagnosed with cancer but when they relapse. It's a totally different story. You know how your child has reacted to everything. You've seen what they've been through already. You never want to put your child through it once, let alone twice. You know how rare their disease and how many kids survive it. After being remission, you know what it's like to have a normal life after cancer. Both Kate and Taylor have been living life to the fullest these past 8 months. Both girls have been off treatment for 8 months. Taylor was in treatment for MDS and Kate was in treatment with her original cancer. Cancer sucks and needs to end.
Yesterday and today were hard days.
In English class every year, we write Young Author's.
I decided to write about Ellie's life.
It was hard to write everything about Ellie knowing her life story would end.
I ended up with almost 6 pages of my short story.
I know Ellie would have been proud.
It would be amazing to be able to go on to the next level.
Then, maybe even to state.
Wouldn't it be amazing to get Ellie's story out even more?!?!
I don't know when I'll find out who is going to the next level.
But, if Ellie has anything to do with it.
I'll make it all the way.
I have faith that my short story will touch more people's lives.
I hope I at least make a difference in a couple teachers' lives.
I prayed the whole time I was writing.
I talked to Ellie, also.
I asked her to guide my hand and mind in to what to write.
I was going to make up a story but, why not do a true one that could change lives?
Ellie's story can.
P.S.- I will post what I wrote when I get it back.

Ellie,
I miss you, baby girl.
I hope you were happy with my work.
Gently touch the people that read it.
Let them know that you are there.
Until we meet again.
Love always,
Allison<3

A couple thoughts to Kate,


  
Kate McRae,
I love you, little girl.
You are beautiful inside and out.
You are amazing.
Lean on Jesus, little one.
Prayer can go a long way.
God will heal you, baby girl.
You have touched so many.
You are truly an angel on Earth.
You are a miracle.
You are,
Kate McRae.

Sunday, February 20, 2011

Taylor Love


Taylor in 2007 fighting her first fight with neuroblastoma.
 Taylor in remission with neuroblastoma.
Taylor right before she was diagnosed with MDS.
Taylor in the hospital for her bone marrow transplant.

Taylor the night they found out she relapsed with neuroblastoma. She still has a smile!

If the first day of this month wasn't enough,
another.
Another one of the kids that have touched my heart so much has relapsed.
This is Taylor Love.
Taylor is 5 years old.
Here is her story.
  
Taylor Nicole Love was born June 27, 2005. Around Christmas of 2006, her parents noticed an apparent lazy eye. They took to Taylor to her pediatrician who referred them to an ophthalmologist which led to the devastating news. On December 12, 2006, Taylor was diagnosed with stage 4 high risk neuroblastoma. She had a tumor in her left adrenal gland, a tumor behind each eye, and disease in his bone marrow. Taylor underwent 7 rounds of chemotherapy, a surgery to remove the tumor in her abdomen and a stem cell harvest. She completed 4 rounds of a phase I clinical trial which included immunotherapy treatment and IV radiation. She had radiation to her head, orbits, and abdomen. She also underwent a phase II antibody trial.
Taylor went into remission with neuroblastoma.
In June of 2010, Taylor was diagnosed with MDS. MDS is a form of chemo-induced leukemia. She underwent a bone marrow transplant in August of 2010. Taylor was again cancer free!
Taylor started school after being out of it almost her whole life in January. On February 17, 2011, they found out a few neuroblastoma cells had been discovered in one of her 4 bone marrow biopsy samples. Taylor is now in the fight for her life... again. This is the third time she will fight this evil thing called cancer.


After Kate relapsed February 1, I didn't think it could get worse.
But it has.
Not one
But TWO!
Of the kids that changed my life so much
Has relapsed 16 days between each other.
The main kids that have touched my heart are
Ellie Potvin
 Layla Marsh

Kate McRae

McKenna Maiorana
 
Taylor Love
 
and
Daisy Merrick.
 
And I would say in that order.
Those girls were the first stories I started following.
 Ellie and Layla are dead.
Kate and Taylor just relapsed.
McKenna is fighting it now. She's almost done.
And Daisy just finished chemotherapy for relapse.
6 girls with different types of cancer in different stages of treatment.
They all have one thing in common.
They've stolen my heart.
They were the first.
That makes them a little more special than most.
Even though I love all the kids I follow with all my heart.
 
Please pray for Taylor as she has relapsed after almost 3 years of remission with neuroblastoma. Please pray they find the right treatment for her. Please pray the relapse is only in her bone marrow and has not spread. Please pray for Taylor's parents and her brothers, too.



Wednesday, February 16, 2011

Kate McRae

Kate playing a game.

Right before PET scan that showed relapse.

Yesterday at the airport, on the way to San Hose for consultation for new treatment.


Never did I think I would have to use the word relapse with Kate.
Never.
But I do now.
Never did I think I would have to use worlds metastatic brain cancer with Kate.
Never.
But I do now.
After everything she's been through.
Never could I have imagined this.
Never could I have imagined her relapsing.
I just knew God would heal her.
But now.
It's hard to know.
After brain surgery, 5 rounds of chemotherapy, a stem cell transplant, and 31 days of brain radiation,
The cancer has still survived
And is spreading rapidly.
Why?
We'll never know.
She lost her hair.
She lost her right side movement.
She lost some of her speech.
She lost her childhood.
She lost a year of her life, she'll never get back.
She lost her other cancer friends.
 She lost more than I can say.
All to one thing.
Cancer.
Evil, evil cancer.
I can't believe after 8 months of no treatment
it's taking over again.
Please pray for this precious child.
Kate McRae

Friday, February 11, 2011



Wednesday, February 17, 2010- That's the day this little girl came into my life and touched my heart forever.
Her name is Kate McRae.
She had just turned 6 at the time.
I remember it like yesterday.
Kate was going through a very difficult stage of her treatment.
She was going through her stem cell transplant.
This treatment alone could have killed her.
She had already been through 5 rounds of chemotherapy.
I watched her counts recover as her cells she received back started working.
I watched her be sent home from the hospital the first time in a long time.
I saw her start brain radiation.
I saw her finished brain radiation.
I watched her go on a trip of a life time.
She went on her Make-A-Wish trip to Disney World.
I watched her go through her first MRI off treatment.
It was inconclusive.
I watched her go through a PET scan one month later.
It showed she was CANCER FREE!
I watched her go through her next MRI.
It was inconclusive once more.
I watched her family live one day at a time.
The wait killed me as much as it did her parents.
I watched her go through her 7th birthday.
Celebrating another year of life.
I watched her once again go for a MRI.
This time was different.
New spots were found.
My heart was broken.
I fasted for her the day before her PET scan.
I watched go through the scan.
This time, was also different.
Preliminary results were positive for cancer.
Results were positive for cancer.
Kate had relapsed after 8 months of remission.
  
This has been a hard 2 weeks. I never thought I would have to type those last words. I have prayed for her since the day she came into my life.  I've asked more times than I can count for God to heal Kate's little body here on Earth. Supratentorial primitive neuroectodermal tumors are so rare. Very little treatment options are available especially when relapsed. As February 17, 2011 approaches, I think back to Kate a year ago. A year ago, she was fighting for her life. This year, so much has changed. The only bad thing this year is, Kate is in the fight of her life again. But there are things that will always stay the same. Kate's smile; her fighting spirit; her infectious laugh; her beautiful, sky blue eyes; her child like faith; her love for family and everyone that loves and prays for her everyday; and her love for Jesus. I pray no matter where Kate goes in life, she always knows that God is with her.

Kate has touched my heart deeply. I hate to look at the road she now faces before her. I hate to think about the chances of her getting in remission again. Today... I've decided to live for today. I'm going to stop thinking about down the road what will happen with Kate. I will cherish the smiles she has. The life that she represents today. If I get a lifetime of smiles with Kate, I will cherish them as they come. But today, I refuse to let the future scare me and take away Kate's precious life.

Prayer specifics for Kate
  • Complete healing of Kate's body on Earth
  • Peace for Kate, her parents, her brother, and her sister
  • Wisdom for the doctors or anyone that comes in contact with Kate
  • To find the best treatment option
  • For Kate to touch as much lives as she can
  • For Kate to bring people closer to Jesus
Please pray for this precious child.
We love you, Kate!
 

Tuesday, February 1, 2011

Pray for Kate, Please.

This picture is from today right before Kate was sedated for her MRI. Look at that beautiful smile. That beautiful blonde hair. Those beautiful blue eyes. She truly is an angel.<3

This is one of the hardest things I've had to write. Kate's MRI today showed she has new spots on her brain. If you haven't heard Kate's story, I'll tell you a little about it.
Kate was born December 26, 2003. July 29, 2009, was supposed to be a fun day of summer fun for Kate and her family. They were going to the water park! However, Kate's parents had noticed a slight hand tremor in her hand that had got notably worse. They decided to take her to the doctor for safe measures. The doctor ordered a CT scan of her head. They found a tumor on the left temporal lobe of Kate's brain. Kate underwent brain surgery (craniotomy) on July 3. They were only able to remove 50% of the tumor due to it's location and it had wrapped around the left middle cerebral artery to her brain. Right after surgery, Kat experienced right sided paralysis along with the loss of speech. Pathology showed Kate had a supratentorial primitive neuroectodermal tumor or sPNET. Kate began chemotherapy. Her family and doctors were hoping the could avoid radiation after her stem cell transplant. Kate completed 5 rounds of intense chemo and her MRI showed she still had residual tumor. This meant she would need radiation. Kate finished brain radiation on May 24, 2010! On June 29, 2010, exactly one year from her diagnoses, Kate's MRI post radiation was inconclusive. She had a PET scan one month later that showed no signs of cancer. Her September MRI was questionable with a new spot appearing but it was very little and the doctors weren't concerned. Her next MRI also showed a very little new spot that doctors weren't really concerned about. Until today. Today, Kate's parents and the rest of Kate's followers hearts were broken. Kate's MRI showed new spots. At least one on the other side of her brain. This broke my heart to read. 
"Through the tears Kate slowly got out the words, 'why'. 'why daddy, why? why hasn't Jesus healed me?' The sound of heartbroken sobs all that could come from her daddy's lips."
This little girl has touched my heart so much in the last year. February 17, 2010 was the day Kate came into my life. I'll never forget it. I can't imagine her going through this again. But it looks like she will have to, soon. Radiation isn't an option this time. She has had her life maximum.
I want to remain positive and hope that somehow, these new spots are not cancer! That they are not tumors! I have to pray that much. If they are, well... I'll cross that bridge when and if we get there. I have to pray Kate will forever be healed on Earth! sPNET tumors are really bad, I know. But someone has to survive! And that person's going to be Kate! I can feel it!
Please pray for Kate. Her mom, Holly. Her dad, Aaron. Her older sister, Olivia. And her little brother, Will.